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Spirit of Jefferson Farmers Advocate
Charles Town, West Virginia
May 21, 2014     Spirit of Jefferson Farmers Advocate
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May 21, 2014

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pAE e12 I pirit of JEFFERSON and FARMER'S ADVOCATE I Wednesday, May 21,2014 I NEWS n Blue FROM PAGE B10 Throughout May - offi- cially Neurofibromatosis Awareness Month - anyone can make an appointment at Head Hunters or other area salons taking part and for $10 can get a blue streak for $10. All proceeds go to the leading neurofibromato- sis research institution, the Children's Tumor Founda- tion. Now instead of just Fish- er's hair prompting con- versations about NF, many others would be boosting knowl- edge of the condition, too. Khloe's dad and brothers, aunts, cousins, preschool teacher, class- mates, friends and even complete strangers have gone blue for Bean. Now the campaign has grown to include other hair salons across Jefferson County and in Berkely County, too. For Khloe, seeing so many peo- ple join in the cause has been a spirit booster. "Whenever we hear about someone else who's gone blue, she says 'For me?' It's been wonderful for her to know there are so many people who want to understand what she's dealing with and want to support her." The Fishers. say they feel grate- ful that Khloe's health is so good now. For now, she continues to be monitored by neurologists in D.C. with thorough assessments ev- ery six months, but in all other re- Spects, she is a typical 5-year-old who splits her days between pre- school and playing with friends, broth- ers and two pet dogs. "We're so grateful : - there are so many families dealing with NF who have it so much worse," ex- plains Donnie Fisher, a Jefferson County native who works in real estate. "We are grateful every day and try to not worry about what may be ahead." Certainties about ..................... NF are few, Kara Fisher said. "What they say is that the only thing predictable is the unpredict- ability," she said. "We just don't know what the future holds and because there's no cure, that isn't easy." But the Fishers say they're de- lighted that a small idea to shine a spotlight on NF has grown. The "Go Blue for Bean" may become a May tradition - and officials with the Children's Tumor Foundation have asked for details with the possibility ever anticipated and it's good because we're not only .see- ing awareness of the disease rising but all the money that's being raised with bring us that much closer to a cure." 66 By the time I came back that afternoon so that Khloe could get her hair dyed, there were people lined up to go blue, they'd created a Facebook page and a flyer. Stylists at other salons were on board. It was off and running." - Kara Fmher Tree Removal & Grinding Firewood Now Available for Delivery Kyle Friend Will you go BLUE FOR BEAN? How can YOU show your support?. For only $10 you can go "BLUE" at Head Hunters Salon & Day Spa. Have a temporary BLUE streak dyed in your hair to represent your awareness and support! Let's add a little color to the world for a GREAT cause for the month of May! All proceeds will be donated to help raise awareness of NF. Call us to book your "BLUE For Bean" appointment TODAYI 304.725.8080 Neurofibromatosis is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to;3,000 births). Neurofibromatosis affects more than 100,000 Amedcans. It's more prevalent than Cystic Fibrosis, hereditary Chdren's . 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